Occitanie Data’s ethical charter
In order to provide a framework of trust for the exchange and sharing of data between public, private and academic structures, Occitanie Data has undertaken in the summer of 2019 to draw up an Ethical Charter for the use of data.
A first version of this Charter (to be downloaded below) was born from a fruitful collaboration between Occitanie Data and the BIOETHICS research team, led by Emmanuelle Rial-Sebbag (a research team specialised in ethical issues related to health innovations and attached to the University Toulouse III Paul Sabatier and INSERM).
This first version is not, however, definitive: it is intended to be consolidated after confrontation with external views, with a view to identifying paths for improvement. In order to do this, our first ambition was to organise citizen co-construction workshops in the course of 2020.
However, the health crisis has affected our project and we have had to review our roadmap in order to postpone these citizen workshops. While waiting for the return of better conditions, we bounced back by organising during the summer of 2020 a first series of virtual workshops with sectoral experts (mobility, energy, health, employment and training, environment, and agriculture), which were very rich in content.
Our desire is to include as many people as possible in the co-construction of this Charter, we therefore encourage its dissemination and sharing (in accordance with the terms of the Creative Commons License: Attribution (quoting Occitanie Data) – No Commercial Use – No Modification 4.0 International.) and invite those who wish to do so to complete the contribution form below.